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Monday, February 29, 2016
Rare Disease Day (Joanna's Video)
Today is Rare Disease Day, and as some of you know, my daughter Joanna has battled Klippel-Feil Syndrome and a host of related syndromes and disorders her entire life. She also has an indomitable spirit, though, and has never let her medical problems stop her from going after what she wants in life. Have a look at the video she's made for Rare Disease Day:
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9 comments:
Great video, great person.
Thanks for showing us this James. An excellent video.
That was an excellent video
I saw it on Facebook and I'm quite impressed by this wonderful young lady.
If only more people had her spirit and compassion, imagine what a wonderful world this would be. Thanks for sharing this.
Very inspirational and informative video. Thanks for making it, Joanna!
Beautiful and inspirational--as is your whole whole family, James.
Thanks for sharing that. She is a very impressive person.
A wonderful mixture of wisdom and courage.
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