Monday, February 29, 2016

Rare Disease Day (Joanna's Video)

Today is Rare Disease Day, and as some of you know, my daughter Joanna has battled Klippel-Feil Syndrome and a host of related syndromes and disorders her entire life. She also has an indomitable spirit, though, and has never let her medical problems stop her from going after what she wants in life. Have a look at the video she's made for Rare Disease Day:


9 comments:

Bill Crider said...

Great video, great person.

Walker Martin said...

Thanks for showing us this James. An excellent video.

Keith West said...

That was an excellent video

Cap'n Bob said...

I saw it on Facebook and I'm quite impressed by this wonderful young lady.

Jerry House said...

If only more people had her spirit and compassion, imagine what a wonderful world this would be. Thanks for sharing this.

Peter Brandvold said...

Very inspirational and informative video. Thanks for making it, Joanna!

Ed Gorman said...

Beautiful and inspirational--as is your whole whole family, James.

Jeffrey Meyerson said...

Thanks for sharing that. She is a very impressive person.

SteveHL said...

A wonderful mixture of wisdom and courage.