Rare Disease Day (Joanna's Video)

Today is Rare Disease Day, and as some of you know, my daughter Joanna has battled Klippel-Feil Syndrome and a host of related syndromes and disorders her entire life. She also has an indomitable spirit, though, and has never let her medical problems stop her from going after what she wants in life. Have a look at the video she's made for Rare Disease Day: