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Monday, February 29, 2016

Rare Disease Day (Joanna's Video)

Today is Rare Disease Day, and as some of you know, my daughter Joanna has battled Klippel-Feil Syndrome and a host of related syndromes and disorders her entire life. She also has an indomitable spirit, though, and has never let her medical problems stop her from going after what she wants in life. Have a look at the video she's made for Rare Disease Day:


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9 comments:

  1. mybillcrider10:02 AM, February 29, 2016

    Great video, great person.

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  2. Walker Martin6:39 PM, February 29, 2016

    Thanks for showing us this James. An excellent video.

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  3. Adventuresfantastic7:06 PM, February 29, 2016

    That was an excellent video

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  4. Cap'n Bob1:00 AM, March 01, 2016

    I saw it on Facebook and I'm quite impressed by this wonderful young lady.

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  5. Jerry House6:23 AM, March 01, 2016

    If only more people had her spirit and compassion, imagine what a wonderful world this would be. Thanks for sharing this.

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  6. Peter Brandvold7:15 AM, March 01, 2016

    Very inspirational and informative video. Thanks for making it, Joanna!

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  7. Ed Gorman9:40 AM, March 01, 2016

    Beautiful and inspirational--as is your whole whole family, James.

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  8. Jeff Meyerson9:43 AM, March 01, 2016

    Thanks for sharing that. She is a very impressive person.

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  9. SteveHL4:37 PM, March 01, 2016

    A wonderful mixture of wisdom and courage.

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